
*WARNING: This is not my usual happy-go-lucky post, but as true and raw as I can be right now. This post is about my sweet little boy Brady and the latest with him.* I promise to be happy-go-lucky as soon as possible*
I was hesitant about posting about this at first because of how vulnerable it would make me, but this blog was started for myself and my family. One day Brady will read this and I want him to know exactly how much his mommy and daddy are rooting and fighting for him.
For the last 3 days, I've been in a fog. We had Brady's PT evaluation on Wednesday and the news didn't seem all that great, but at the same time I knew in my heart of hearts that it wasn't going to be-he has hypertonia in his legs. What does this mean? It means that even at resting his muscles are contracted and stretched which makes it hard for him to walk (or which is why he is not walking). The PT informed me, even though I already knew, that he would not be walking anytime soon. In fact, this could be a very difficult road for Brady. When she left, I had a good, long cry in the bathroom and felt very, very sad for Brady. Images of Brady riding a bike, playing soccer, running with his brothers flashed in my head. As a parent we have visions for our children...we don't have visions of them with a disability. And although we don't know for sure if this is a "disability", it is what it is, he has a gross motor delay. So I spent the next several days questioning God, "Why Brady?", "Why me?", "How can another BAD thing be happening to us again?"
And today after a good cry in the shower, it hit me-the lights came on. God doesn't give this Steel Magnolia anything she can't handle. I guess He thinks I can handle more than the average person....losing my sister, dealing with infertility and now...? My job is to be Brady's mother, his cheerleader, his best advocate-it's not to be SAD for him and to PITY him. He doesn't need that-he needs someone who believes he can do anything and I know that he can and will walk one day. Besides, I have two other beautiful children that need me as well. We have an amazing and wonderful life and I it will continue to be just that.
Maybe I became a special education teacher for this exact moment. I know the right questions to ask and the right providers to talk to-just as I "knew" I would encounter infertility, I dealt with it, followed the advice of doctors and became my own best advocate and because of that I have these 3 wonderful boys in my life.
I don't want anyone to feel sorry for me, my son, or the rest of my family. We are going to be OK, Brady is going to be fine because he has a family that believes in him and knows that he will do anything that he sets his mind to. He doesn't need a mother that is going to be sad for him, wishing he was this way or that way. He has a mother that is going to root and cheer for him like any mother would do for their child. He is still the same Brady he was yesterday, happy as a clam and very smart too. If I could only give you a recording of that sweet little voice of his. His and Jack's language is exploding everyday-new words here and there and it always makes me smile to hear them.
There may be those who don't think I should have posted all of this, but I'm doing so because there may be someone out there just like me, having their own pity party, and may need that extra boost of assurance that their child is going to be fine. My job is to be Brady, Jack, and Harrison's SUPER MOM and that, my friends, is what I am.